About Tuberous Sclerosis Clinic and cases
Since then for the last four months, we have 5 ongoing treatment of the TS. Two of them just started treatment and so did not include statistics. The remaining 3 cases has more than 3 months treatment history in our clinic to report briefly.
About Tuberous Sclerosis Clinic
|Since then for the last four months, we have 5 ongoing treatment of the TS. Two of them just started treatment and so did not include statistics. The remaining 3 cases has more than 3 months treatment history in our clinic to report briefly.
1) 6 years old. Girls. Taking Sabril.cramps 1 time a year, EEG abnormality. Language development delay => currently almost no improvement
Conclusion: yet there is no effect, should watch progress..
2) 2 years old. Boy. Taking Orfil and Sabril, Disappearing cramps.Lost eye contact, language development delay, cognitive decline. Very distracting => Eye contact has been revived, spontaneous language try, changed to be stable.
Conclusion: The significant improvement in cognitive development has been on going, normal cognitive development expected with continued treatment
3) Four months. Girl.Taking Tegretoll cluster cramps 2-3 times per day, 6-7 times of cluster cramps per time, => reduced frequency and degree by 1 to 2 times of single cramps per day
Conclusion: There is a steady declining cramps. Expect cramps disappeared soon and normal growing process as development process is maintaining solidly.
In first case,it is rather early to determine whether improved or not since it is necessary to do long term observation of change of brain waves and etc.
It is required time to report every case completed, however, we are going to release data briefly hereby as we have seen " 청혈거어법“ is very effectively applicable to Tuberous sclerosis.
We eagerly hope it helps patients with tuberous sclerosis who has no hope of treatment.
Case 2 wasalready a balanced state of spasm by anticonvulsant, but was on stage of fixing cognitive decline . A Mental retardation is one of the important symptoms of TS, Therefore, it is important finding that cognitive decline is markedly improved.
In third case,we made seizures reduced by brand new herbal treatment based on traditional therapy " kind of Refreshing Blood therapy “. The patient was continued to spasm despite of taking anticonvulsant. In this new therapy we dropped any of anticonvulsant. As it worked only through stimulating brain blood circulation process indirectly, we expect further improvement and it is very positive.
Case of seizure treatment of newborn baby 17days old
17 days old, boy, induced labor in 38 weeks, born as 2.8KgAfter birth, face changed in red and upper body was stiffed 5-8 times a day before sleep with the sound of moan. 2-3 times eye-back cramps a day found
Test results - tumors in the heart , numerous nodules found from Brain MRI, diagnosed Tuberous Sclerosis, Convulsion waves found from brand wave He had been in a general hospital in Seoul for 3 days taking Keppra and left to our clinic. Eye back convulsion was occurred even on the way to our clinic in the taxi though he was taking Keppra.
From a copy of medical record from previous general hospital, convulsion waves found in the area of C4 during sleep on Nov. 21 2013, 13 times of rhythmical delta wave, cramps clinically or sub-clinically (when head moved) found
Parents wanted to drop anticonvulsant and only wanted to use herbal treatment as anticonvulsant did not control seizure.
As far as seizures from tuberous sclerosis concerns, it is not easy to control seizure itself neither medically nor chinese medically. Particularly, in case of complex partial status epilepticus, it is not easy to manage at all, though it is well controled in some degree for generalized epilepsy, We talked with parents to consider dropping anticonvulsant after quickly we make seizure off.
When Patient of TS shows Neonatal epileptic, in most case there is high passibility to accompany cognitive impairment. It is important to process preventive treatment in order to proceed normal cognitive development. 17 days after birth is too early to check up developmental degree. The seizure control was prior challenge aimed maintaining stable developmental process, patient hospitalized in our clinic. First, we used the prescription to sooth patient's seizure with a possibility of change the prescription if there is a problem in cognitive area. Acupuncture was performed twice a day in the morning and afternoon.
In the third day,there was one time of eye up cramp occurred. found face reddening and stiffness convulsion reduced by 1-2 times a day.
The eight day,there was only time of EBD pattern found. Stiffed convulsion was found only once a several days. Afterward eye turn convulsion and face redden and stiffed convulsion was disappeared.
The 12th day, patient movement became active, visual search happened normally, showed signs of normal development, such as moving the head from side to side in the prone state.
The 11th day,refer to parents description, there was a little twitching symptoms shrinking arm and leg, confirmed by a simple modernity convulsions appeared momentarily.
The 12th day,no convulsions, development steadily maintained, however it is observed in many places continuously abnormal EEG from EEG checkup in our clinic.
Therefore, we decided to keep dose little amount of anticonvulsant without increasing amount of dosage and to continue taking herbal treatment medicine to maintain cognitive development. The patient left clinic anyway.
Currently, he is 3 months old, visiting us once a month, maintaining a stable development progress without convulsion.Because children's brain development takes place until the age of 36 months, it should be the best time to proceed with the ongoing management of the treatment by that period.
Majority of parents are reluctant to care for a newborn with chinese herbal medicine, but it is not the right attitude. It can not ever be a problem if we check regularly with the blood test to confirm the preventive side effects
As shown above, it is rather desperate to take care premature infants by herbal treatment.